Patient, carer and public representation is extremely important to us because it offers an opportunity for those who use the services to contribute to clinical guideline development. Patient and public involvement means that the final guideline is focused and relevant for the people most affected by them. Additionally, our guidelines are accredited by NICE (National Institute for Health and Care Excellence).
A workshop/ Focus Day to ensure patient and public involvement, is usually held in May each year following the March Launch meeting when the topics for the next audit cycle are decided. The workshop is usually a half-day session and is relaxed and informal. There is a presentation of each topic from a Guideline Development Group representative followed by a round table discussion to explore issues such as:
- How best can we involve patients, carers and the public in this topic and the work of the Guideline Development Group?
- What are the key questions we should be addressing from a patient and public perspective?
- What additional resources could really make a difference?
We held Focus days every year between 2015 and 2019 inclusive. Each day was successful in securing input from members of the public who attended helped with the development of each guideline. Unfortunately due to the pandemic there were no Focus days in 2020 or 2021.
We are currently reviewing plans for 2022.